I went to the funeral of a dear friend on Tuesday – a fellow
kidney patient that I thought the world of, a good man and truly a force of
nature, who the last year or so lived
largely by sheer will and determination.
In all the time I knew him, he relished life fully every single minute. It’s
made me think about how we live this life we have; reminded me of some words of
advice from an unlikely source on this subject: Pope Paul VI.
Somebody
should tell us, right at the start of our lives, that we are dying. Then we
might live life to the limit, every minute of every day. Do it! I say. Whatever
you want to do, do it now! There are only so many tomorrows.
The
irony is that we DO know. But we often
go forward with the sense of having unlimited time, pretending, fooling ourselves,
like we can somehow out maneuver our own mortality.
And yet,
that is the gift of chronic illness that we don’t always think of as a gift; we
have a keen awareness of this mortality of ours. In fact, it is the very understanding of the finiteness
of our lives that can help us make every day count. We have the opportunity of really living life
because we understand how precious it is, and we know enough not to waste any
time.
So this
is to affirm the pleasures of life, from the perspective of
remembering how fleeting they can be, and given however much time any of us has. Truth is - none of us really knows. And there are lessons to
be learned about living fully, with joy and making lasting memories, mindful of the
numbering of our days. Even with health
considerations, we can make time for the things that are important and the
things we really love. If you have ever
heard Randy Pausch’s "Last Lecture," you understand about living life every
minute. He said: "The key question to keep asking is: Are you spending your time on the right things? Because time is all you have ... and you may find one day that you have less than you think."
Taking a spin on the recent book
written by a palliative care nurse focused on regrets expressed by those who were
terminally ill, it’s important to remember that there is never a need for
regret. We can use past experiences to understand what changes we would like to
make moving forward, to simply choose to do things in a different way, starting
today. We can be at peace with the past and remember that each moment is a new
choice. And we can choose to live life
fully and with joy. Some of things I’ve
learned to keep in mind from my kidney friends, among others:
Live the life you want, not
the life others expect
Honor your dreams and try to find
ways to experience and achieve the things that are important to you. You’ll be surprised at what you can do each
and every day, but you won’t know until you try.
Being able to have productive work is good; but don’t make that
the be all, end all.
It’s certainly necessary to earn a
living and having work you enjoy that you feel contributes, is positive and
enriches your life. But keep your
priorities straight, and don’t spend too much of your life on the treadmill of
a work existence.
Have the courage to express your feelings.
Suppressing feelings in order to
keep peace with others takes a toll. Being honest and saying what you need to allows
you to be true to yourself.
Stay in touch with your friends.
Give friendships the time and effort
that they deserve. The comfort that comes from common experiences and shared
history is increasingly important as you go through life, and continuing to
enjoy connections with friends is one of life’s great delights, and a great source
of support through those tougher times.
Let yourself be happier.
Most people don’t
realize that happiness is a choice. It allows us to each be fully who we are,
to revel in our individuality, celebrate our quirks and foibles, laugh properly
and have silliness in our lives again.
As they say, if you want to be happy, be.
This is a tribute to all those who have touched my life sharing this journey; those I still can spend time with, and especially here, those whose memories I celebrate every day. I miss them ongoingly, and so wish they'd had more time. But I continue to live my life joyfully as they did theirs, mindful of these things I've learned from them. So here’s to Lee ... and to Ed, to Ron, Jerry, Jim, Ralph, Shawn, Carol, and Sherai – and so many others. And to their loved ones still here - and mine - supportive, understanding and standing by - showing each of them and me, how love really is a verb.
Finally, here’s to all the people in each of your lives, the ones here and those no longer with us; so long as we remember them, they will continue to remain with us. And by their examples, they can help us live our best lives for the time we are here.
Please take care and stay well ... enjoy your days ...
Kathe that truly was an eye opener and I know that came right from your heart. Reading through I couldn't stop myself from thinking how much of life i mis out on because I don't speak my mind or go and do things I would love too if giving the opportunity. And you are right no one is promisd tomorrow. But god willing I will wake tomorrow and be another day closer to my goals, a real vacation, and my friends and family. And i cn always go with your virtual vacations :)
ReplyDeleteJamie - Thank you. And you are right - I felt that deeply. We all get caught up in daily life, but then something happens to remind us to keep track of what's important, and to find little joys in daily life. Virtual or not ...
ReplyDeleteDear Kathe,
ReplyDeleteI couldn't have said it better myself, sometimes it's only through loss that we remember to "stop and smell the roses" If living with CKD has taught me anything it's that "tomorrow isn't promised." Live life for today, embrace the ones you love, and keep the ones you lost in your heart.
The last week has been a painful lesson on how short life can be and how quickly it can be over. My dad always said to me "You make your own happiness" and now more than ever I need to remember that.
So Keep on fighting all you Kidney Warriors! Find your joy where ever you can.....
~Kidney Blogger
Dena - Thank you. You were very much on my mind as I wrote this; though I didn't know your Dad, you certainly are one of the kidney friends I treasure. And I think the truth of it is universal - though I wish we could learn these lessons some easier way... Kathe
ReplyDelete